'"Lubid"--TS Episode on Tourette Syndrome

For those of you who haven't watched "Lubid", the tourette syndrome episode on MMK, you can already watch it at TSManila. Enjoy!!!!

MMK EPISODE ON TOURETTE SYNDROME

TOURETTE SYNDROME PREVIEW ON "MAALAALA MO KAYA"

GERALD ANDERSON'S PROMOTION ABOUT TOURETTE ON MMK

TOURETTE SYNDROME ON "MAALAALA MO KAYA" CHAN 2 AND TFC CHANNEL

Our episode about Tourette Syndrome will already air on NOVEMBER 7, SATURDAY ON MAALAALA MO KAYA CHANNEL 2 AND TFC CHANNEL. Please don't forget to watch this very touching story.

MMK TAPING ON TOURETTE SYNDROME WITH PTSA

Our SNN Preview of the Upcoming Episode of MMK for Tourette Syndrome

MMK (Channel 2) Exposure of the Philippine Tourette Syndrome Association

Finally, we got the exposure for MMK at abs-cbn. This is our very recent TV exposure (2009). They will feature the life of Jerome Concepcion who is one of the members of the organization (Philippine Tourette Syndrome Association). And the lead actor will be Gerald Anderson. Please stand by for the date and time of the episode coming this November. You can also watch it in TFC Channel overseas.

Dealing with Medications' Side Effects

Many people diagnosed with Tourette Syndrome have always been experiencing hardships when taking medications. This has been a constant battle since the side effects can be very overwhelming. If a person takes the medication the first time, it is expected that there may be a number of adjustments the person might consider. It is paramount to secure a list of the side effects that the medication might have. Ask your doctor regarding this. It is better to ask for these information the first time you have visited a doctor. Be vocal in asking your questions and be very straightforward. It is better to understand all of these for better prognosis. Preparing your child in school while on medication is a very challenging task. As parents, you have to be very observant in your child’s symptoms and other observations that you might encounter regarding the medications’ side effects. Observing any side effects at home is as pertinent as observations made in school. This is a collaborative effort between the parents and the teachers.

Below are information from Dr. Leslie E. Packer (www.tourettesyndrome.net) on his tips on dealing with medication side effects.

If the student is experiencing increased thirst, allow the student to have unlimited access to water, juice,or whatever fluids their physician or they request. Many students may want to keep a water bottle on them at all times. If the student is experiencing visual blurring as a side effect, reduce the amount to be read, provide a reader, and use books on tape if the student will be remaining on that medication.

If the student is experiencing frequent urination problems, nausea, vomiting, or diarrhea, allow the student to have a permanent pass that they can use to just leave the room without having to ask.

Note: if a student has these problems, inform all teachers that the student does not have to ask permission to leave the room and will just be leaving as needed. In conjunction with this, the student should be asked if they prefer to sit near the door or elsewhere in the room.

If the student is experiencing "rebound" problems of increased hyperactivity, weepiness, or irritability as a dose of a stimulant medication wears off, provide less demanding academic activities during that time and allow more opportunities for the student to move around or engage in activities that are gentle and calming for them. Also speak to the parents and/or physician about whether the in-school dosing schedule should be adjusted. If the student has no appetite at lunch time, the in-school dosing of any stimulant medication may need to be adjusted if the child's lunch period can't be changed (although that would be the first thing to try). In general, stimulant medications should not be taken 30 - 40 minutes before mealtime, as they suppress appetite. If the student experiences cognitive dulling, allow the use of word banks and other accommodations for word retrieval; allow more time for assignments. If the student is on a neuroleptic (e.g., Risperdal, Zyprexa, Haldol, etc.) or Anafranil (clomipramine), they may experience increased appetite and significant weight gain. Speak with the parents and physician about whether to allow the student to have a snack on them at all times or whether to schedule snack breaks, etc.

If the student experiences tics (involuntary movements or sounds) while on a stimulant medication such as Ritalin, Concerta, Metadate, Dexedrine, or Adderall, inform the parents so that they are aware of the tics, but in the meantime, do not comment on the tics (ignore them) while you figure out what types of interference they are creating so that you can make accommodations for the tics (see the handout on accommodating tics for specific accommodation ideas).

If the student is on an SSRI (Prozac, Zoloft, Luvox, Paxil, Celexa) and seems to be getting more aggressive or “wild,” inform the student’s parents and the prescribing physician, as this may mean that the medication is triggering hypomania or a manic episode.

If the student cannot wake up in the morning to attend school (due to a medication side effect or a sleep component of the condition itself), there are various accommodations to explore:

􀂃 Reduce the student's course load and allow the student to start the day later.
􀂃 Schedule "heavy" academic courses later in the day.
􀂃 Allow the student to start the day later and provide tutoring in the home so that the studentdoesn't become demoralized over falling further behind.
􀂃 Ask the student if scheduling a highly motivating class for first period might help them wake up; be guided by their assessment of their situation.
􀂃 If the student is falling asleep in school due to medication side effects or the condition itself, speak to the physician about whether to let the student sleep or to try to rouse them, but provide the student with hard copies of all notes and presentations, and insure that all assignments are recorded

Conference with the parent about whether the student is capable of keeping up with homework or is falling asleep at home. You may need to reduce homework or significantly extend time on assignments.If the student is experiencing impaired concentration and/or memory due to side effects or the condition
itself:

􀂃 You may need to record the student's assignments for him/her. This can be done by the teacher or assistant but responsibility for it should be assigned to a staff member.
􀂃 For older students, provide hard copies of all board work and lecture notes.
􀂃 Remind the student at the end of the school day which materials he or she needs to take home,or provide Resource Room as the last period of the day so that the student can use the time to go get missing papers, notes missed while out of class, materials, etc.
􀂃 Allow extended time on in-class assignments, homework, and big projects. Conference frequently with student on big projects to assist them in getting started and staying on schedule.
􀂃 Provide a second set of books for the student to use at home.
􀂃 Assign an assistant teacher or paraprofessional to the class to assist the student discreetly.
􀂃 Pitch to the student's strengths. By providing enriching and interesting materials, the student's focus and energy levels will be enhanced.
􀂃 Testing accommodations may have to include alternative forms of testing such as allowing for word banks if the student is experiencing word retrieval problems due to medication side effects.

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CONTACT US

We are happy to tell you about Tourette Syndrome, contact us now!"

MARIA ROWENA "WENG" BALMORES- VICTORINO, M.Ed.,RN,BSN

Founder

Email: marowenaab@yahoo.com
Mobile: 0915. 4424340

MARLON BARNUEVO

Founder

Email: barnuevo@yahoo.com
Mobile: 0917. 8538650

A BIG THANKS!

I would like to thank those who were present at my talk last saturday at the 1st Philippine Graduate Conference in Education. It was really a big leap for me, for my research and for my advocacy for Tourette Syndrome in the Philippines. You can always contact me regarding information about TS or perhaps if you want me to present in your institution.

READ MY RESEARCH ABSTRACT

Author will Present in a Conference

The author is inviting everyone to witness her speak about her research on Tourette Syndrome entitled "Group Dynamics as Intervention for Filipinos diagnosed with Tourette Syndrome" at the Benitez Hall, College of Education, UP Diliman on March 7, 2009. The conference will start at exactly 7:45 am. Slots are for first come, first serve basis. Register now.

REGISTRATION DETAILS:
Registration fee is affordable (at PHP 500, inclusive of snacks, conference kit, and certificate!) And, if you register on or before February 21, 2009 , you don't have to worry about lunch. You get it free! Registration is strictly first come, first served, until all seats are taken. Only paid registrations are counted. And all payments are non-refundable, but transferable with 25% surcharge to cover administrative costs. We have only 240 seats available, and we won’t overfill the venue. If you want to make sure you get a seat, you may register through BPI (Bank of the Philippine Islands) or see us in class, until March 6, the day before the conference. On-site registration is on March 7, 7:45-8:15 AM.

REGISTER THROUGH BPI
Here’s how to register through the bank:
1. Go to any Bank of the Philippine Islands (BPI) branch.
2. Fill out a deposit slip to:
ACCOUNT NAME: Philippine Graduate Research Conference in Education
CURRENT ACCOUNT NUMBER 1991-0083-023.
3. Deposit your payment of PhP500 and claim your deposit slip. Bring it on the day of the conference as proof of payment.
4. Text, fax, or email us the details in the application details right here to reserve your slot.
Our Telephone numbers: PLDT (telefax)— 02-927-9860Globe Cellphone — 0927-628-7148 Our email address:philresearch.conference@gmail.com
5. We will call, text, or e-mail you back to acknowledge your application.

FOR MORE INFORMATION, PLEASE VISIT THE PHILIPPINE GRADUATE RESEARCH IN EDUCATION

A Message from Dr. William Drew Gouvier

Congratulations on your academic success, and best wishes for your growing and important service venue. If only the world had more people like you… May you have health and joy in this New Year."

Yours Truly,
Dr. William Drew Gouvier
Department of Psychology
Louisiana State University

A Message from Dr. Ronald Ruff

Dear Members of the Tourette
Syndrome Organization,

From San Francisco, I send all of you my very best wishes for the coming year. As Einstein said: “The only life worth living is a life lived in service to others.” Your organization gives you the
opportunity to contribute to each other, while also receiving the support from those that have walked in your shoes. Remember the strongest character emerge when an individual diligently copes with hardships. I am proud of your organization.

Respectfully yours,
Ronald Ruff
Clinical Professor of Psychiatry University of California, San Francisco

Author's Accepting Invitation to Speak in Seminars, Conferences and the Like

If you would like the author to speak about Tourette Syndrome in your Institution, please contact 0915.4424340 or email marowenaab@yahoo.com. She would also welcome invitations from seminars, conferences, forums and the like.

READ HER RESEARCH ABSTRACT