2010- A Xmas Party Offered for the Children of Nazareth Homes

The Philippine Tourette Syndrome Association decided to hold their christmas party in Bulacan. Because of all the blessings they've had for 2010, they decided to pay their blessings forward by giving gifts to the Children of Nazareth Homes. PTSA headed by TS Support Group in Bulacan in collaboration with Project ABC (Abandoned Children) made a day full of joy, gift giving, dancing, and a blessed feast for all these children. Not to mention that a 19 yr- old TS diagnosed individual, Aileen Pacia, shared a moment of speech for these children as she shared her challenges having TS. She even shared the value of being strong despite hardships in life which the children of Nazareth were truly inspired.

This event is primarily rooted from the realization that eventhough it's hard for you to experience a life with Tourette Syndrome, there are also many out there who may have more difficult lives than yours. So the least thing we can do is to be thankful of what we have and cultivate them to make you a better person each day---- then in end, the world would be a better place.

PTSA would like to thank Mr. Butch Duay, our Tourette Syndrome support group coordinator in Bulacan, the TS support group in Bulacan, the President of Project ABC, and of course the head of the Children of Nazareth Homes for the warm welcome.

And to the abandoned children of Nazareth Homes----- "we will not be able to relieve your pain but by understanding it and sharing it, we might make it possible for you to bear it".

Paying It Forward

It’s the last month of year 2010 and the Philippine Tourette Syndrome Association thought of paying all our blessings forward to other people who are most in need. Our members who are diagnosed with Tourette Syndrome have long been battling with the disorder and fortunately, all of them are successful in their own respective walks of life. The attitude of proper coping and courage to accept who they really are and what they are capable of are great tools that these people have used over the years to love themselves more despite the disorder. This encouraging experience fuelled our drive to share our blessings to people who are also in need--- that in the eyes of humanity we should not complain because there will always be people who are less fortunate than us. So the Philippine Tourette Syndrome Association collaborates with Project ABC to share our blessing to children of Nazareth Homes in Bulacan, Philippines. This will be a one day yuletide event that will serve not only a time of merriment but also to instill the idea of “true giving” this Christmas.

We will be giving the kids gift bags with practical things they need--- soap, toothbrush, toothpaste, toiletries, etc. We would like to ask your help in providing them these things. We will also welcome other kind donations for these kids—books and clothes are also welcome. FOR YOUR DONATIONS, please coordinate with our support group coordinator in Bulacan, Mr. Butch Duay (0917.8040726) if you’re in Bulacan area. However, for your general inquiry and donations if you’re in Manila, please contact the founder of the Philippine Tourette Syndrome Association, Ms. Rowena (0915.4424340).

We are hoping for your kindness in this fruitful event. 

Meet Up with the Punos

Mardi Puno and her husband, Eldred came to visit Manila to see the founder of the Philippine Tourette Syndrome Association. Mardi is our TS support group coordinator in Cebu, her son John J is diagnosed with TS. They appeared in one of our media exposures in GMA channel 7 in Kapuso Mo Jessica Soho (see the video) Butch, our TS support group coordinator in Bulacan and his mother including Stauro, also joined the fun. A dinner at pizza hut bistro and lots of good conversation made our night.

Tourette Syndrome at Pinoy MD

Tourette Syndrome at Pinoy MD hosted by Ms. Connie Sison at GMA Channel 7



PTSA at the Philippine General Hospital

Tourette Syndrome as St. Scholasticas College, Manila

Thank you to Ms. Kristel Pascual, President of Education Society of St.  Scholasticas College in Manila, for organizing this event. Thank you also to all the professors who came in, the students, and all the people who helped organizing this event. Thank you all! Another successful campus tour!

Really--- It's all about LOVE and UNDERSTANDING

The Philippine Tourette Syndrome Association has been around for quite sometime now. Over the years, we found ourselves in the pit of an overwhelming success and fulfillment. Seldom people feel to be working and loving their work at the same time but for us in the organization everyday became sort of an outing, a moment of merriment, a moment of unexplainable gratification. Although, we talk about one thing and one thing only---- Tourette Syndrome, but we get to meet a lot of people! Truly a remarkable feeling.

Days have been passing by in front of us. It’s a surprise how things turn out for the organization. And it is even more overwhelming to see people coming out of their shell and telling us--- 

“I am diagnosed with Tourette Syndrome, I want to join your organization and meet people like me.”

Whenever we get to meet people especially those diagnosed with Tourette Syndrome, our purpose, mission and vision are emphasized. And everyday is a realization that yes, we are doing exactly what needs to be done!

Recently was another joyous moment. Again, Tourette Syndrome was exposed in the media thru a television show called “True Stories” by Vicki Morales in Qtv channel 11 at GMA Network. Oftentimes TV show producers would ask people diagnosed with Tourette Syndrome from our community and these people are the ones being shown on TV. But this is the first where the featured person with TS came from a very popular public figure—Ms. Romina Sotto or popularly known as Apples Sotto, the eldest child of Senator Tito Sotto and actress Helen Gamboa.

Mino Sotto, one of the two sons of Apples, was diagnosed with Tourette Syndrome. Apart from that, Mino exhibited hyperactivity which was the most pronounced symptom in the early stages of his disorder. Right in the beginning, he was also diagnosed with ADHD (Attention Deficit Hyperactivity Disorder). Eversince, Mino has been having these complex symptoms, Apples has always been very supportive and accepting of the disorder. It was even nice to know the courage that she has to give Mino a well deserved life.

One of the accomplishments of the Philippine Tourette Syndrome  Association is other people’s advocacy for TS in the Philippines. It helps us expand our mission to create an awareness in the Philippines. We hope that more people will stand by the organization to make TS known in the country because while there may be technologies to fully study what Tourette Syndrome is all about---really--- love and understanding for people with Tourette Syndrome can already go a long way. 
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 Related Links:
Two Mothers Raised their Special Children: By Cathy Guballa

 

TS School Intervention- Angelicum College

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JUNE 19, 2010 GET TOGETHER

PTSA EYEBALL...YOU ARE INVITED!!!

Everybody's invited to join the Philippine Tourette Syndrome Association's

get together on June 19, 2010 Saturday at 9:00 am at

Pasig Bible Baptist Church Octagon Subd. Brgy. dela Paz, Pasig City

EVERYBODY'S INVITED..AS IN EVERYBODY!!!

KITA KITS MGA KA- TICS!!!

-for the location, please text  09204919313 and look for Dennis or refer to the map below- 

TS Symposium at University of Makati

Tic-Talk for the Third Time

IT'S COMPLETELY FREE! YOU ARE INVITED!

Human Chain for Peace

The Philippine Tourette Syndrome Association
together with the Rotary Midtown Diliman

will participate in the quest for
HUMAN CHAIN FOR PEACE

to be held on February 27, 2010 at the Quezon Memorial Circle
Assembly time will be from 5 am- 6:30 am

Participants will line up around the perimeter of the Quezon Memorial Circle by 7 am, with arms locked sideways to form the human chain. Everybody should face the road. Then, the Rotary Hymn will be played for all to hear. At the agreed signal (sometime at the beginning of the hymn), participants alternating blue & yellow shirts will begin to walk around the perimeter of the Quezon Memorial Circle.
After the walk, all club Presidents and PEs, with their Banners, shall proceed to the Rotary Peace Monument, the venue of the Program Proper.
A brief program at the Rotary Peace Monument will then be conducted. After the covenant signing, ‘peace’ doves and balloons will be released.

FOR THE PTSA COMMUNITY
please wear a YELLOW TSHIRT, jeans or jogging pants and rubber shoes to keep you comfortable. Bring bottled water, extra tshirt and a towel.
You will be gathered by Mr. Marlon Barnuevo for the event.
Please contact PTSA regarding this.

ADVERTISE WITH US!

As part of the Philippine Tourette Syndrome Association's Fund Raising activity, we will be accepting advertisers in our batches of PTSA's Organization Profile Booklet. The booklet is given to members of the organization (professionals, hospitals, schools, etc.). This is also complimentary given to our consultants in the field of medicine, education, counseling and psychology. As such, the booklet can reach very wide and diverse group of individuals, just perfect for your advertising needs.

As a fund raising activity, the utilization of advertisers in this booklet sustains not only the printing but also the other projects of the organization. Below are the fees for your advertisement.

FULL PAGE (text or image- Php 1000 / $ 21)
HALF PAGE (text or image - Php 800 / $ 17)
1/4 PAGE (text or image - Php 500 / $ 10)
DONOR (text only- Php 200 / $ 5)

If you are interested, you may now reserve a space for your advertisement by downloading the Advertisement Contract, filling it up, and sending it back to us at ticawaywithme@gmail.com.
Pay the required fee at any branches of Western Union and send the MTCN number via sms at 0915.4424340. The organization can also arrange for meet-ups for the payment if you are just within Manila area. Once payment is recieved, send us your layout via email and we'll take care of the rest.


ADVERTISE WITH US NOW!!!

Activities/ Projects

The Philippine Tourette Syndrome Association continuously pushes its way to more awareness about Tourette Syndrome in the Philippines. As it is dynamic and multi- faceted in nature, the organization continuously drives to advocate people with Tourette Syndrome and their families. As such, there is an incessant innovation to develop activities and/or projects that will substantiate the goals of the organization.

The following are the organization's current and future activities/ projects:

Since 2007, PTSA hasn't stop meeting individuals with Tourette Syndrome, their families, their friends and even professionals who wanted to know about the disorder. For 3 years and counting, the organization has been very active in providing "coffee conversations" for these people. These people just call us to meet them and talk about Tourette Syndrome. The organization can be contacted anytime for TS "Small Talks".

Every now and then, PTSA does "Campus Tours" providing colloquiums onTourette Syndrome and details about the organization. The seminars are being organized by the Support Group Coordinators in each area. The organization can be contacted anytime if you want Tourette Syndrome to be presented in your school, hospital, or just anywhere. If there is an available TS Support Group Coordinator nearest you, please contact them to help you organize a TS Seminar in your area. We are very willing to speak about Tourette Syndrome on your behalf. Your area could be our next "Campus Tour", contact us now!

THANK YOU FOR HELPING US ADVOCATE TOURETTE SYNDROME IN YOUR AREA!!!!

1. Mr. and Mrs. Raul Valuenzuela- Scout Area
2. "Twitch and Shout": Lay Forum on Tourette Syndrome, St. Lukes Movement Disorder Center in Association with the Philippine Tourette Syndrome Association
3. Del Cano Family: "Tic Talk" at Pitogo Highschool, Brgy. Pitogo, Makati City
4. Butch Stephen Duay, TS Symposium: Bulacan State University, Bustos, Bulacan
5. TS Seminar, Health Week at Bustos, Bulacan
6. Achilles Dana, PTSA with the Rotary Midtown Diliman, Timog, Quezon City
7. Butch Duay and Angie Santos: "Tic Talk at Bulacan": 3rd TS Symposium, Bulacan State University, Bustos, Bulacan
8. Del Cano Family: Tic- Talk at University of Makati9. Dennis de Guzman and Family: Tourette Syndrome Presentation at Pasig Bible Baptist Church10: Arlene Valenzuela: School Intervention at Angelicum College 11. St. Scholasticas College in Manila

Thank you for considering Tourette Syndrome and involving the Philippine Tourette Syndrome Association in your movies.

Kontrobersyal
RX Men
Salamat Dok
Emergency

I-Witness
MMK
Kapuso Mo Jessica Soho
True Stories

We call aspiring directors, producers, documentary experts, script writers, film students...we can work together and make Tourette Syndrome as your subject. Help us increase the Filipino's awareness about Tourette Syndrome.

WATCH ALL OUR TV EXPOSURES

---

THESE PROJECTS NEED YOUR HELP
DONATE TO THE PHILIPPINE TOURETTE SYNDROME ASSOCIATION
(Click to Donate)

The Philippine Tourette Syndrome Association hopes to provide a summer recreation program for all the members of the organization. This would instill camaraderie among members and strengthen the PTSA community. This would primarily be a venue to explain further issues surrounding Tourette Syndrome and their application to the daily lives of people with Tourette Syndrome, their families and friends. Not only that, the program constitutes activities for uplifting their self- esteem, confidence and motivations in life. Aside from that, there will be sports activities headed by Coach Stauro Punongbayan (a taekwondo blackbelter/ coach/ instructor). Finally, the program will end with a night of musical fun and presentations. The members get to showcase their talents by their musical numbers.
(CLICK HERE TO SEE DETAILS OF THE PROGRAM)

For the organization's primary objective of advocating people with Tourette Syndrome and increasing awareness of the disorder in the Philippines, we strive to produce materials that will substantiate those goals. The organization continue to develop story books for children with Tourette Syndrome, brochures/ leaflets, magazines, the PTSA booklet and other materials with information on Tourette Syndrome. WE NEED YOUR HELP IN THIS PROJECT.
(FOR PRINTING AND PUBLICATION ASSISTANCE PLEASE CONTACT THE ORG)


PLEASE SUPPORT OUR FUND RAISING ACTIVITIES !!!

SEE DETAILS OF "TEE FOR TOURETTE PROJECT"

3rd TS Symposium BSU, Bustos Campus, Bulacan

BULACAN STATE UNIVERSITY- EXTENSION SERVICES OFFICE
in Cooperation with the
PHILIPPINE TOURETTE SYNDROME ASSOCIATION
Bustos, Campus
Bustos, Bulacan

Present

TIC- TALK BSU 3RD TS SYMPOSIUM

organized by our Support Group Coordinators, Bulacan Chapter
Mr. Butch Duay and
Ms. Angie Santos

Headed by Bulacan State University's Director
Cornelio O. Garcia

Attendees were Nurses, Guidance Counselors, SPED Teachers, Principals and Teachers from:

Living Angels Christian Academy
Montessori de Sagrada Familia
Grace Christian Academy
Marian College
Baliuag University
Shekinah Christian Academy
NCAP
Mary and Jesus School, Inc.
St. Mary's College of Baliuag
Colegio de Sto. Nino
HCA, Poblacion
Notre Christi Academy of the Philippines
Marian College
Holy Child Academy

THANK YOU VERY MUCH FOR EXTENDING PTSA'S TS ADVOCACY
IN BULACAN...TO THE SUPPORT GROUP COORDINATORS,
KEEP IT UP!!!

PTSA WITH ROTARY MIDTOWN DILIMAN

The Philippine Tourette Syndrome Association presented Tourette Syndrome to the Rotarians and their Annes of the Rotary Club Midtown Diliman headed by the President Achilles Dana. The whole of PTSA Community is so thankful for the very warm welcome.

SUPPORT GROUPS

The Philippine Tourette Syndrome Association is now slowly expanding throughout the country to continue spreading awareness on Tourette Syndrome. As such, we are developing support groups that will aid in sharing the organization’s core values, mission and vision. The individual support group’s primary objectives are to (1) provide the families in the provinces easy access on information about Tourette Syndrome, (2) provide emotional support to those individuals and families involved in Tourette Syndrome, (3) facilitate implementation of current projects of the organization thereby reaching those people in the provinces, (4) provide motivational activities for people with Tourette Syndrome and their families in order to functional well not only as individuals but as better individuals in the society, (5) become a permanent support giving body to people with Tourette Syndrome and their families.

VOLUNTEER TO BE A SUPPORT GROUP COORDINATOR.

Any registered member of the organization can be a support group coordinator. The registered member needs to be active enough in advocating the core values, mission and vision of the organization. He/ she should facilitate propagation of the projects and activities of the organization for better implementation. He/ she should study information about Tourette Syndrome and stay current. He/ she should abide by the policies of the organization. However, the organization can appoint members in this position if proven suitable. If you are accepted as Support Group Coordinator in your area, you will be given a copy of the “RESPONSIBILITIES OF A SUPPORT GROUP COORDINATOR” thru email and you are expected to abide by those responsibilities. 

THIS PROJECT IS NO MORE THAN REACHING OUT TO FAR PLACES IN THE PHILIPPINES AND EDUCATING THE PEOPLE ABOUT TOURETTE SYNDROME. THIS IS PRIMARILY ROOTED FROM THE FOUNDERS’ COMPASSION FOR THESE PEOPLE AND THE CONTINUOUS DRIVE FOR TOURETTE SYNDROME ADVOCACY.

HELP US EXPAND. START YOUR OWN TOURETTE SYNDROME 

SUPPORT GROUP NOW!

TOURETTE SYNDROME SUPPORT GROUP AREAS

MAIN- MANILA
Support Group Coordinator: Marlon Barnuevo
Occupation: Industrial Designer/ Professional Musician
Email: barnuevo@yahoo.com
Contact #: 63917. 8538650
Marlon is diagnosed with Tourette Syndrome, he is currently the organization's Vice President and Co- Founder of the Philippine Tourette Syndrome Association"

TAGAYTAY
Support Group Coordinator: Admer Barata
Occupation: Fastfood Crew
E-mail: drebelguy_005@yahoo.com
Contact Number: 63928.7355147
Admer is diagnosed with Tourette Syndrome. He is an active member of the organization and moving his way up to motivating people with Tourette Syndrome especially the kids!

CEBU

Support Group Coordinator: Mardi C. Puno
Occupation: A Beautiful Mother and a Loving Wife
Email : eldredpuno@yahoo.com
Contact #: 09182848591
"Mardi is an active member of the organization, he has a son with Tourette Syndrome"

BULACAN
Support Group Coordinator: Butch Stephen Duay
Occupation: Science Instructor
Email: bs_duay@yahoo.com
Contact #: 044 308 4017
"Butch organized the first TS symposium in Bulacan State University, Bustos, Bulacan...since then he hasn't stop advocating TS in his area"

 

MAKATI
Support Group Coordinator: Franco D. Del Cano
Occupation: Employee of DPWH
Email: fdelcano_naia@yahoo.com
Contact #: 0922.8444778
"Mr. Del Cano and Family organized the first TS symposium at Pitogo Highschool, Brgy. Pitogo in Makati City"

LAS PINAS
Support Group Coordinator: Alec Loteria
Occupation: Full Time TS Advocate
Email: alec_loteria15@yahoo.com

"Alec is organizing a fund raising project called Tee for Tourette, he is diagnosed with Tourette Syndrome"

PASIG

Support Group Coordinator: Dennis de Guzman
Occupation: Pastor
Email: dennisdeguzman@rocketmail.com
"Dennis opened the Cherith Brook Ministry that provides spiritual and personal counseling to people with Tourette Syndrome and their families, he is diagnosed with Tourette Syndrome"

TEE FOR TOURETTE

Join us in our advocacy for Tourette Syndrome. Make your own tourette syndrome shirt with acknowledgement to the Philippine Tourette Syndrome Association (you can either use our logo or put our website "www.ptsa.org.ph") and incorporate it in your design. You can use any color and whatever design you want. You don't have to be in the Philippines to join the drive "TEE FOR TOURETTE". All you have to do is to make your own shirt, design originality is always the best, take a picture of yourself wearing it, and upload your picture in our facebook account in the photo album entitled "MY TEE FOR TOURETTE". The 3 most creative designs will win gifts from PTSA. But the best design will be the organization's tshirt for the year! Hurry! Entries will due on February 16. Give your love for people with Tourette Syndrome. Tshirts are the best way to express our deep concern for these people and a good way to disseminate information.

GIVE LOVE FOR PEOPLE WITH TOURETTE SYNDROME.
GIVE LOVE FOR THE PHILIPPINE TOURETTE SYNDROME ASSOCIATION.
MAKE YOUR TEE FOR TOURETTE NOW!