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8/02/2007

Please do understand....

I recieved a letter from a 17 year old kid. The moment i read it, it just blowed my heart away, empathy began to rise. The kid told me to post this in the site hoping to touch the hearts of parents and other people who has a loved one with TS. I immediately posted for the same purpose. This is very special to me because this is a filipino kid with TS, and an intelligent one!
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Hi, i came across your site and im impressed with all the information you got here. This is what i usually do if im not at school...browsing the internet for some stuff. Anyway, i wouldn't want to give off my name ( hiya ako eh! baka sa susunod may guts na ako :-) ) i wrote to just let out the feeling i've been having for a very long time. i was diagnosed to have TS when i was just 10. at first sabi ko sa sarili ko...ano yun???? parang kakaiba yata! i understood my disorder when mama explained to me everything. honestly nung yung doctor and nag-explain..wala akong naintindihan. anyway, good thing my mom had her way to explain it all to me. i knew then that i was different. nagpasalamat na lang ako na hindi maapektuhan ang aking pag-iisip. dibah?! mahirap para sakin...for the reason that most people don't have a clue what's happening to me. alam mo, naisip ko na lang i don't need to explain anything to them. pero minsan parang kelangan ko na ring iexplain just to let them know that this is what i've been going through for 7 years already. it's been very difficult. sometimes its not even the disorder anymore...it's what other people would say or think about me. maybe they were thinking that i'm crazy! i hope people can really be educated about the disorder. i know there are a lot out there that are being diagnosed with Tourettes everyday. family support is a big thing....if my family would not support me, i wouldn't be as positive as i am right now. next is public education, so they will know the reasons behind the ticcing. next is professional support in all aspects ( physical and more on psychological). and i more thing...i hope doctors will empathise to the one being diagnosed... minsan kasi nahahalatang bigay lang ng bigay ng gamot okay na. it's more than the medicines actually. other kids out there wanna be healed emotionally...not really physically.
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the letter is a very powerful one, inviting people from all walks of life to understand somebody who has Tourettes. I hope this letter can be viewed as one of the reasons we have to embrace what we have and not be ashamed of it. If you have your own story please send it so that other people will become aware that they are not alone.


2 comments:

Anonymous said...

Your letter is indeed very powerful. This sends out a signal for every professional out there to start revolutionizing the management for Filipinos diagnosed with TS. It is only evident that we all just get used to the conventional mode of treatment which is medications. But as you may all know there are other alternatives out there that are also being used effectively. You may even use them in combination. You are very correct in saying that sometimes or most of the time, these people need to be healed more psychologically. This is because of the many behavioral problems that goes with the disorder. Literatures everywhere or sites like Tic Away With Me are all mediums for advocacy so that understanding regarding the disorder is maximized even more. The Philippines, as well all know, is a baby in this subject in comparison with the researches that the other countries have done. Nevertheless, this is quite a breakthrough that the Philippines is slowly taking this into consideration. Let's just hope that more and more activities can be done soon to help organize the TS community in the Philippines. With people like you, we can make this happen.

Anonymous said...

Hi, Mr. (or Ms.?) 17 year old,

I'd like to hear from you. I hope that you'll get to see this message soon. E-mail me at barnuevo@yahoo.com or text me at 0917-8538650. Let's talk about TS.

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