Pages

8/24/2011

A Mother's Note About his Son Who Has Tourettes


the last time i wrote about his tourette syndrome was more than a year ago...at present, since classes started or even during summer vacation, his tics were rarely noticeable. t'was only during the lst week of classes maybe because of new excitement and pressure of going back to studying and meeting new people, new teachers etc. but as a whole until today, i can say that his tics are very minimal. his big brother teased him that he misses his tics. and just like every night that comes, i remind him to pray. i used to tell him that we pray to the Lord to remove his tics in His time but if it is Thy will, He gives us strength to accept it. i tell him that God has a reason why He gave him t.s. and it is not for us to ask why. what is important and we are thankful for  is He gave us the gift of life. He gave us so many blessings in life like his intelligence esp. in Math which many are having a problem at. i always tell my kids to share their knowledge to others esp. to those who are having problems with it. give free tutorials to your classmates and teach them well.

he just finished his 100 tabs. of magnesium and i plan to give him polynerve syrup next month. he said that he can't see any difference when he was taking them and now that he has not. anyway, i'll try the polynerve coz it is just like a vitamin for the nerves.

i continue to pray for him and for all the members of my family that we may all be united in supporting john j with this disorder. i suppose it helps a lot that he is in a small group where bullies are less to find. they are only 20+ in the room and the school has a population of less than 200 in high school. he is very active in whatever activity they have and i encourage him to join always. i am very glad his classmates are very supportive of him. he says there are a few who teases him but he says it's ok coz they are his friends.

he rides the ferryboat  when he goes to school and so he can relax there unlike in the jeepney, you are all cramped together and everyone stares when your body makes a movement. in the ferryboat, he can gaze at the sea while listening to his ipod. nobody stares at you and everyone seems busy with whatever they are doing like chatting usually with their companion. i suppose this has helped a lot too now that he's commuting thru the ferryboat and not the jeepn ey. he enjoys the ride a lot now he wants to be a seaman like hi dad.

whenever i mention some people who are still in the denial stage of acceptance, Ely butts in saying...yes, just like your husband before. i just tell him it's ok you're over it and i am happy that you have accepted the truth. he  loves his kids so much and it pains him a lot to know that jj has t.s. everytime he calls, he always asks about his t.s. and how it is. he's a lot happier now that i tell him that they are very minimal and hardly noticeable nowadays. i remind him though that tics may come and go so we just have to be ready and accept what the future has in store for his t.s. what is truly important is we have john j and we love him very much with or without his t.s.---mardi (a mother who has a son with tourette syndrome)

1 comments:

Anonymous said...

Im reading articles related to tourette since im suspecting my son of having it. Im currently in the earlier stag3 of coming in terms with it and it is really breaking my heart everytime I see my son having tics attack. Im fearing what he woukd face when he would be in his teens. He is 8 years old now and im very worried about it....

PHILIPPINE TOURETTE SYNDROME ASSOCIATION's Fan Box

WHAT PEOPLE ARE SAYING